Saturday, May 23, 2009
It's been a while...
How do you prepare for colonoscopy and have a panic attack? I mean so bad that you start to cry hysterically and can't go through procedure unless your daughter is there holding your hand? But be so at ease preparing for brain surgery?! In the weeks that have passed since my surgery I have heard the words brain surgery over a dozen times. News, tv shows. Grey's anatomy, Farrah Fawcett's Story. One fiction, one non fiction. Fear is a very real emotion. Something that we all have experienced in a lifetime. Some insignificant and others very significant. A colleague called me because she knew of my recent brain surgery. I spoke to her and explained my story but everyone is different. I wanted to keep her positive and upbeat. I heard the fear in her voice her words cracking as she spoke. She divulged that 3 tumors were found. And she had no movement in 3 fingers. So it was determined that her tumor was not in the same location as mine. She's spending 3 days in the hospital and will have to wait several weeks before she finds out if it benign or not. It made her very concerned that titanium screws will be put in her head. When I was told about the titanium that seemed like the least of worries. I will call her tomorrow to give her support. I don't want to think about what I will say to her I'm hoping the right words will just flow. I am so lucky, thank you God.
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Thursday, December 18, 2008
wow!
She is walking and being as active as she was before the surgery, before the tumor-- well, before we knew about the tumor.
It's like it never happened. But it did, and we are thankful everyday for how perfectly everything went. I am going to make an appointment for her MRI so they know how much of the tumor he got out and so they a basis for her yearly MRIs so we know if it's changing at all.
We're ready for the holidays!!!
Tuesday, November 25, 2008
Saturday, November 15, 2008
She just came back from vacation!!!
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My long time friend Barb who lives in New Carrollton, Md came to Philadelphia and picked me up and took me back with her.
I didn't know she had a dinner party planned in my honor. Sooo much food from shrimp to chicken kabobs which were awesome because Barb is a vegetarian. Her best friend, Jon, had been looking toward my visit since she told him I was a wii bowler. The challenge was on since they both were talking trash. The first game I bowled 210 so they saw I was a force to be reckoned with. It was down hill from there with Barb beating me oh so closely every game! But I was beating Jon!
The next day Barbara and Jon had a "surprise". We went to Mo's Fishermans' Wharf near the Baltimore Harbor for lunch. Unreal! Crab and Scallops Imperial too good. We walked to the car -or so I thought- I asked where are we going? They both replied "a surprise". We walked about two blocks into Mccormick & Schmicks. I really couln't imagine why we were in a restaurant when we just left one. Jon asks for the dessert tray and then orders 3 bread puddings. Are you serious?? I said to myself because I didn't want to be rude. I took one spoonful and then another and another until it was gone!! They knew I would love it and they were right!
Third and last day. Barb took me to the Amtrak station. When I get off the train I see Jenny and Daisy running up the steps they thought they missed me on the platform. When they see me I immediately put all my things down because I knew what was coming. Jenny picks me up and swings me around. We have lunch and talk about the trip.
It was a wonderful get away although I missed the girls and Troy.
Wednesday, November 12, 2008
Thursday, November 6, 2008
Monday, November 3, 2008
Mommy's words
As the day wore on I began to get anxious. Maybe he's waiting to tell me today or he's going to tell me I need radiation because he couldn't get it all out. I shared my anxious thoughts with Jenn so now the two of us are all but freaking out.
In walks dr. K he has a stoic presence
About him like Dr. Summers like you can tell they're doctors.
He confirmed what he initially told us that the tumor was benign. He wants me to get an MRI every year around the anniversary date of the surgery and to go on with my life.
I had several questions regarding the surgery like the consistency, was it taken out in one piece, and was he concerned that my eyes weren't focusing while I was in recovery.
The analogy was to an orange and how you would peel the orange from the skin in sections. It wasn't a solid hard matter. And no concern about my eyes it was the medication that prevents seizures which I will gradually stop taking in two weeks.
As we walked out the office the receptionists complimented my hair or lack of again and wished me well. It was a surreal feeling I wanted to burst out crying. Was it because when I first went to Dr. K's office that I didn't know my fate? And now I've been given a clean bill of health?
My feeling of crying were quickly diminished because Jenny picked me and swung me around! I love her soooo much.
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Friday, October 31, 2008
Her tumor.....
Here is Mommy and Dr. Kotapka:
Thanks Dr. Kotapka for everything!!!
Wednesday, October 29, 2008
A comment from one of Mommy's friends
I love your hair cut, its looks so you, with your beautiful smile. Today is 1 month since your surgery and if no one knew that you had surgery they wouldn't believe it, looks like you are posing for a magazine, continue to be strong and pray, God is the healer.
Love You,
Dee
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Monday, October 27, 2008
Aunt Benay's comment
You look really well and I do truly love the cut. Looks great on you.
And yes you can blog it.
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She lies!
Sorry Mommy and readers-- but we're not going anywhere!
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Mommy's words
I'd like to take this time to thank some family members and friends:
To my baby who was totally responsible for me getting the MRI and discovering the tumor. Thank you for ALWAYS being there for me I love you always and forever. Deja who has been a big help to her News I love you always and forever. Troy thank you for being there with Jenny and being her rock and helping me get around.
Dr. K. The surgeon whom I am forever grateful for a successful surgery. Dr. B my acupuncturist who provided me with so much information about acupuncture, the immune system, and herbal remedies, thank you, Dr. B
Dr. Chris & Staff, your well wishes, smiles and hugs were so sweet I love you all.
Drs. Summers and Felzer, Carol, Jennifer, Jane, Heather and Bethany. Thanks to you it definitely helped in my speedy recovery I will never forget your smiles and hugs.
My childhood friends, Deanna and Benay thank you for being there for me.
Jenny's best friend Evie, Ian and Eva who kept track of me by texting Jenny and blog watching almost constantly.
The prayers, cards, gifts, flowers, balloons, food, calls, and visits I can honestly say contributed to keeping my spirit and energy high over the last 4 weeks I thank you with all my heart.
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Saturday, October 25, 2008
Monday, October 20, 2008
Mom's words part 2
What I think will make me feel better about my hair is COLOR. A funky red. I am going to call Dr. K's assistant first thing Monday to see if it's okay or should I wait a little longer.
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Mommy's words 10/17. I was late posting
"Where are you?!" A voice screams in my ear. Om getting coffee. "No you're not, you're on a bus" great! She thinks I'm on a bus and she thinks I'm heading in the opposite direction even better!
Okay, nice such a nice plan or so I thought. How about the walk from 19th to 9th? I forgot that part of my master plan. So I took my time strolling on Chestnut st. and you'll never guess where I decided to stop? A barber shop. Yes I cut my hair OFF not bald but very close. I had the sweetest female barber so nice. What I particularly like about her was she would cut and then ask if I wanted it shorter. She even recommended hair products. I felt self conscious at first but she was so nice it took my mind off of the haircut Ciara gave me her phone number so I ca let her know how Jenny liked it.. I left there and went to the beauty supply store and asked for the man with the "red hair". We immediately connected he was so nice too. He said the surgeon did an awesome job with my hairline. Oh clarification: no, I put my scarf back on TOO cold out. Got a little tired I didn't get a chance to eat before I left should have taken an apple with me.
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Sunday, October 19, 2008
Friday, October 17, 2008
She got her hair done
I think it looks great and you can barely see the scar.
She's still puffy, her sense of smell isn't as acute and the whole area of the head/brain that was worked on is still numb. It hurts her incision site if she yawns or when she eats and she has more pain towards the end of the day than in the beginning. She still gets tired from over-exerting herself. She still is in isolation but not as bad as before. Isolation is a strong word but she isn't quick to have company or talk on the phone.
All in all I am very pleased in her recovery. I am still pissed that they haven't given her an official "benign" status yet. She has to wait until October 30 when she sees Dr. Kotapka again.
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Thursday, October 16, 2008
Sorry for not posting in a few!
Thursday, Oct 9th
Back to physical therapy! I would have never dreamed that I would be back to PT one week after coming home. The gasps from the staff when I walked in was as surreal as when I went to Jenny's job. I got hug, hugs and more hugs. Dr. B couldn't believe it either but I owe the way that I feel to him and his acupuncture treatment. He has made me a believer!
As you saw from the. photo the stitches are out. The area is healing well. I saw Chris, the crn (I'll get initials and u can put link explaining what they do) I had a lot questions about the surgery that she couldn't answer like what is the consistency of the tumor? What did he use to take it out? Why was the surgery considerably shorter than the projected 6 hours? I see Dr. K in 3 weeks I will get the answers by that time I will probably have a few more questions n
by then. Ironically we saw Dr. K as I was leaving the hospital. He asked me if I was happy. Am I happy how about I run and jump into your arms will that prove how happy I am?!
I am cooking, cleaning, walking, doing just about everything that I did before.
The weekend was amazing! Great yard sales, nice people, excellent weather.
Sunday got our coffee and headed to the golf driving range in Fairmount park. So much fun! Jenn, Deja, Troy, and Deja's friend. After lunch we went to the gun range. I was a little apprehensive because of the noise but with a scarf on and ear plugs it was fine. Fired about 75 rounds in a good "group".
I was requested to make potato salad (family claims I make the best) even I have to say it was good. That talent hasn't changed. I'm looking to see if I've changed any since the surgery. So far so good.
Quote of the Day:
"Doctor gave me two months to live, have to mow the lawn"
From a neighbor with terminal cancer
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Sunday, October 12, 2008
Exciting day
Then we went to the gun range to let off steam from not doing so good golfing (ok, that's why I was shooting). We are all pretty awesome shooting.
I was a little worried about Mommy wearing the eye gear and ear muffs so soon after her surgery, but she did great!! Her face is still puffy, but not nearly as bad. I think it's because she sleeps on that side of her head and the fluid settles there. The nurse said that it should go away next week. I hope so, she seems to be more self-conscious about it now. It doesn't look bad, just different. Her incision location looks great. Her hair is still growing (duh) and it looks like it's healing perfectly.
Unfortunately, we didn't see Dr. Kotapka on Friday (we actually ran into him when we were leaving and he seemed to recognize her). The nurse mentioned that she may have to have radiation just to make sure it's all gone and they STILL didn't say if it was benign or malignant which I just think is bad business. That just sucks. I mean, they keep saying that it seemed like it was a meningioma, but darn, just confirm that it was benign please. Make us feel better, or if it is malignant, let us know so we can deal with it. But this waiting is awful.
I do feel better that they are so nonchalant about it, if they urgently called us in to talk I'd be freaking out.
So anyway, we had a long adventurous weekend. She took Tylenol after our outing today because I think it may have been a little too much, but she'd never actually say that.
:-)
Friday, October 10, 2008
Thursday, October 9, 2008
Wednesday, October 8, 2008
"Can't keep me down"
First day alone. I woke up just in time to see both my babies leaving we threw kisses and yelled "I love you". I decided to take a walk to the Deli a slow walk. I decided to take my digital camera to help me not walk fast. I get into the next block and who turns the corner? The mailman. He jumps out of the truck like Bruce Willis in a Die Hard movie. I knew he would be glad to see me but...NO he was a spy asking me where I was going. After ten minutes of convincing him, he finally let me go. Needless to say I'm going to change my route. {Ed. note: I'll find her where ever she goes. I may not have known today, but I will GPS her butt if I have to}.
I felt so good when I returned not tired but truly energized and happy.
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More words from Mommy
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Tuesday, October 7, 2008
Happy!!!
Mommy got a chance to thank everyone for the gift she got yesterday and to get love from my co-workers! It made her cry to feel the overwhelming amount of love and support of everyone.
It made me happy to have them show her how loved she is.
Plus, she's beautiful. If I wasn't showing anyone her sutures no one would know that she had surgery. She's an amazing woman and she shows her strength every day!
Monday, October 6, 2008
Mommy's words
Take the time to smile at someone today it may do them a world of good.
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Hair check
Her face is still puffy on the right. Her eye looks a little dark on the lid, but she's gorgeous!
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Wonderful friends
It really brightened her day to know that people care.
And my other Evie (Eva L) stopped by the job with balloons and a card for Mommy.
She also got a visitor tonight. So I think knowing that she is loved and thought of by more than just us means a lot to her and is helpful to her recovery.
Between my Evie (Evie D) checking on us, Jane, Heather, my "aunts", my "uncle", all of the Summers', she knows she is loved.
So thank you to everyone who has made all of this so much easier!
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Sunday, October 5, 2008
More words from the impatient patient
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Saturday, October 4, 2008
Troy's Mom Venius
She feels fine, she wishes that she'd just got them both done at the same time, I guess she's scared that she would eventually need that one removed also.
I haven't spoken to her...such a bad "daughter-in-maybe one day-law", but Troy has and he spoke to his brother Tracey, who saw her today. Tra said she looks great and is in high spirits.
Wishing her a speedy and easy recovery.
forgive me
So much to do, so little time?
Mommy has been "ok" lately. I think it's getting to her knowing that she really has to take it slow and that she can't do that much just yet. I have been taking her to get coffee in the morning and yesterday she took a walk around the block-- halfway-- we cut through the garage driveway. She's been taking naps but more like her usual nap as opposed to actually trying to get rest because she's tired and needs it. After coffee and air, I try to get her to take her Dilantin, which is anti-seizure medication (it's just a precaution as a lot of brain surgery/tumor patients have seizures- luckily she's never had one), and go to sleep and she wants to stay up and watch tv until later in the afternoon and then wake up an hour later.
She doesn't like to take pain meds, so she's been on 2 Tylenol every 4 hours (when I am there to make her take it).
She won't tell me how she's feeling, just "I'm ok". I ask if she has pain and she denies it most of the time. I ask her if she's upset about the facial swelling and she doesn't say she is. But you just know she's not herself. I wasn't expecting her to be but I'd like for her to be more honest and say... this hurts, or this swelling sucks, or something other than, I'm ok. Unless it's true. Please don't think I that I want her to feel bad, but I just want her to relay her true feelings to me instead of trying to protect me.
I am going to be 31 in 2 weeks... I can handle it.
I've made her dinner yesterday and today... if you know me that just shows how much I love her because I. Don't. Cook. Um, at all. And I made fish for her. Fish. Ew. But I knew that would make her happy.
So all in all, the swelling was a surprise to me, Troy said that the nurse or doctor said it could happen, but I don't recall.
Let me go get my little patient some ice cream!
Friday, October 3, 2008
Thursday, October 2, 2008
Part of her side of the story
Thank you so much for your support especially to my baby Jenny who is ALWAYS there and for the friends that supported her particularly Troy, Deja, and the Summers' family (staff included).
Now the saga of "happy little accidents" continues from my prospective:
I was not especially nervous or anxious on the morning of the surgery. My heart kind of jumped when I heard my name called because I knew my baby could not be with me at that point. We kissed and I was wheeled away into a holding room for surgeries. That's when I cried, but my guardian angel came over wiped the tears from my face and said "it's ok to cry, but don't worry because you are going to be fine". And I was from that point on. The anesthesiologist introduces himself and an anesthesiologist student introduces himself and asked if I would mind him in the O.R. I said "of course not" and then something funny because they all laughed. Imagine that, me making a funny seconds before lala land! Okay, now I'm being introduced to Fred the maintenance man. He pumps the electricity if the electricity goes out. Now I get it. This is a test to keep my mind off of the surgery. And to see how lucid I am afterwards. Ok, I have all the names memorized, put me out, put me out before I forget!
My intention was to see Jenn's face when I woke up and to say this little inside thing that would make us both laugh. She said my eyes were going from side to side rapidly and I kept muttering our inside joke. I think it was because I'm waiting for the Post Op pop quiz. Whew! Thank goodness, no quiz.
I'm whisked away to ICU a nice room right in front of the nurses station (how comforting).
Editor's note:
It was not as swift as she thinks. She was in recovery for 2 hours and had a CT Scan. It just felt like everything was that quick.
I felt so good that I laid back, crossed my legs over one another, and stretched my arms over my head. Just as I was about to breathe a sigh of relief... Someone lightly taps at the door guess who it is!? Right, Mr. Anesthesiologist. "How are you Ms Stratton?" "Fine", I said brightly.
Uh oh, here's come the quiz I shouldn't have sounded so strong when I said "fine". Then in a weaker voice, " I'm okay", then a near whisper "thank you for stop.." I closed my eyes and voila! I heard the door close lightly and as I peeked with one eye he was gone!
Editor's note:
More than likely she actually fell asleep and "peeked with one eye" an hour later.
The following morning the nurse said she ordered breakfast for me. Yes! So I get oatmeal, jello, juice." "Hey, mister", I yell, "this is the tumor removal ICU, not the teeth removal ICU there's nothing wrong with my mouth it was my head that had the surgery". Musta worked because ten minutes later I was eating bacon and eggs!
Stay tuned for more of her adventures.....
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Wednesday, October 1, 2008
Her sutures
She doesn't seem happy today but she says she's ok. She's still in ICU and she might move tonight or tomorrow to another room. I think she's scared because she won't have such close care.
She's making me sad.
:(
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Tuesday, September 30, 2008
Cyberknife
Unfortunately, Mommy wasn't a candidate for it as her tumor was attached to her optic nerve and there wasn't enough room to use that device.
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They're lucky I wasn't here.
This morning the clinical manager stopped by to apologize.
So, I left around 3:30. I was exhausted and wanted to take a nap (I got here around 10).
Mommy calls me when I got home and said that the nurses were giving her evil looks. So I tell Troy and he calls his contacts and Dr. Kotapka happened to stop by shortly after that call.
I get back around 6:30 and Mommy says, "I didn't want to tell you over the phone, but I went to the bathroom and the nurse left me." Apparently she pulled the emergency cord and waited about 13 minutes and her nurse never came. My Mommy the brain surgery patient walked herself out of the bathroom, washed her hands (sink in the room as opposed to the bathroom) and got herself into bed.
Are you kidding me?!?! You know that I think they were angry that my Mom complained about the noise. I could see if they hadn't poked around in and removed something from her brain. I could see if she didn't have a friggin drain stuck and hanging out of her head to keep fluid out of her brain.
But since, they've been really nice and more quiet. Lucky for them nothing happened to her. She could have tripped, fallen, fainted. How would they explain that?
It wasn't her normal nurse that did it.
By the way, she knew it was 13 minutes because she'd texted me to tell me she had to pee.
I hope tonight is better or they might have a guest visitor.
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This evening
Pain level is 4/10. Drain is empty as of right now so we'll keep an eye on that. They're checking her eyes, pulse, hand and feet movement and pulse in her feet. Listening to her lungs. Clear. Getting antibiotic. Went to restroom.
Doing great!
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Water
Evidently one function of that gland regulates thirst. Last night she had probably at least 12 huge cups of water (in a short span too). She had a catheter and I could see where her pee was being contained. She was peeing a LOT every few minutes. I just found out that she wasn't really wasn't thirsty it was just that the gland was affected.
She keeps having "heroin nods" from the morphine. She'll be in the middle of a sentence and fall asleep for 5 minutes and then wake up to finish her sentence.
She also has a lot of gas.
I know that some/most of this stuff is gross and too much info, but I want people to be informed. This blog isn't just for our family and friends, it's also if you google meningioma tumor you can find more than just clinical information, you can find out about a real life person.
58 year old Brenda Stratton from Philadelphia that HAD a meningioma tumor.
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Pencil, car and boat
She did!! Whoo hoo.
Blood pressure is a little low but she's been in bed for over 30 hrs. Breathing is good.
They have her sitting in a chair which is awesome!!
She said she's a 5 out of 10 for pain.
They are very pleasant here.
The naps in the middle of conversations, but she'd just had meds before I got here.
Oh, did I tell you they kicked me out last night? I was DEVASTATED!!! I could have stayed in the waiting room but she asked that I go home and sleep. Didn't want to, but for once I listened to my Mommy.
She's off the IV and no longer has a catheter.
She's amazing!
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Monday, September 29, 2008
Close up
Deja and Troy just left. Dayz was a little sad seeing her Nanee so vulnerable, but knowing that the tumor is gone is worth it.
I spoke to Dr. Kotapka and he says that he's almost certain it was a meningioma (the benign tumor) and she'll just need to have MRIs once a year for the next 5 years. She should leave the ICU in 2 days and be discharged from hospital on Friday.
She's been getting steroids to keep her brain from swelling. She's also able to drink now, no food. She's peeing a LOT! The nurse just said that the surgery she had affects urination. The fact that she's had about 12 big cups of water in the past hour probably has more to do with it than anything.
Lab work comes back within the week to make sure it was benign. Once we get that info we can REALLY celebrate!!! Donations? I kid!!!
Thanks so much to everyone that has called/texted/emailed! It means so much to us. I am also thankful of the prayers!
Ugh. She's watching Dancing with the Stars. Its not even mildly entertaining.
I'm gonna go wash her face now.
Good night!
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Yay!
I am so happy that I have her with me!
Many thanks to Dr. Mark Kotapka!
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Quick update
I've only seen her the one time. Nice nurse William checked on her about 20 mins ago.
Her room should be 4045 in the ICU in Tower Bldg.
I will update later.
xo
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In recovery.
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Tears of Joy
He can't tell if she has further vision loss because she's still so foggy. Plus she doesn't have her glasses on!!!
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Weirdness
I then saw Nanny. My great grandmother who died in the 80's. I could see her height and her smile and her nose. She kinda reminded me of Sophia Petrillo from Golden Girls but not as crash. Just in stature and age. I didn't see her as long as I saw Daddy.
I know it seems soooo strange. But it was real. Maybe it was a dream, but whatever. I saw them. And that makes me feel good to know they are in there with her.
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7:46am
The have a hospitality room for surgical patients. It consists of a television, vending machines, restroom and coffee/tea. There are about 14 people here including Troy and I. I have seen just one family leave to meet their loved one.
It's pleasant enough in here. A little loud with conversation. Troy and I took a nap around 7:30ish for about an hour. Then he got us coffee and a nosh. I have a book (or 4) but have crying spells that make me not be able to concentrate. Thank God for Valium!
I won't know her room number until she's out of surgery and into recovery.
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